Rareshare.org is a special social networking for building communities for rare disorders , the goal of the project as mentioned :
RareShare is unique social hub building communities for patients, families, and healthcare professionals affected by rare disorders.
However more explanation about the main idea and concept about this project :
Why Rare Disorders?
While rare disorders seem to impact only a small portion of the population, together they affect over 30 million people in the United States and Europe. Due to the comparably low level of occurrences of individual rare disorders, there is often a lack of information and support for patients and their families. We’re working to change this.
Registering Rareshare.org is easy and simple , you classify your filed of interest and home community , also you set your title as a patient or health care professional .
There are many communities there , some are active ones and many still needs more members and contributions .
Communities list , is a rich list of many rare disorders which powered by alphabetical listing and search . about 677 communities for rare diseases and disorders are listed there .
Every community page at the side bar there is a quick links for the community :
which is a good way to organize a community as well as take more care about the external resources as well .
Community Members and Community Experts :
Every community home page has a set of details regarding this community as :
This social network and communities are designed for social social info exchange and support , but its still didn’t active for many communities – yet – . and needs a bit some marketing through .
How the patients and doctors will interact with it , we will see by time .
Hamza Emadeen Mousa
